to tell how we enjoy life in spite of our challenges!
Here's what happened to the responses some of you sent early this year:
"Managing disability and enjoying life: How we reframe dementia through personal narratives." That's the title of a paper just submitted for publication to The Journal of Aging Studies by Renee Beard, Jenny Knauss, and Don Moyer. The lead author is a geriatric sociologist who used methods she's been polishing in similar dementia research to analyze narratives from persons living dementia, narratives which Jenny and I collected last January by email. Renee concluded that the narratives show that these persons:
have meaningful lives which could be further enriched;
accommodate dementia into their lives;
see dementia as a beginning rather than as an end;
preform the emotional work of managing their disabilities;
creatively construct meaning, order, and selves;
are - and insist on being seen as - individuals having continuing personal stories.
The view shown by these narratives is quite different from the typical biomedical view of dementia and should be incorporated into dementia care, planning, practices, and policies.
have meaningful lives which could be further enriched;
accommodate dementia into their lives;
see dementia as a beginning rather than as an end;
preform the emotional work of managing their disabilities;
creatively construct meaning, order, and selves;
are - and insist on being seen as - individuals having continuing personal stories.
The view shown by these narratives is quite different from the typical biomedical view of dementia and should be incorporated into dementia care, planning, practices, and policies.
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